Sunday, July 8, 2012

A busy week

It’s only been a week since my last post but a busy week it was.  I thought several times about posting during the week but I just wasn’t up to it physically.

Radiation started last Monday and as an everyday event I immediately felt like I was on a runaway train since it kind of took over as a mid-day event that had to happen.  Radiation itself hasn’t been bad but the pain and mobility issues that I am having in my back had become somewhat extreme.  Advil definitely wasn’t cutting it anymore and Dr. Fein wrote me an Rx for Percocet.  At my request the dosage was kept low and it has definitely done the job for me.  Especially with regard to helping me get a decent night of sleep.  A couple of potential scenarios for when I might start feeling some pain relief from the radiation had been described to me and as always Amy and I just adopted our usual one day at a time outlook.  But with 4 out of 10 treatments under my belt I started to feel a slight bit of relief yesterday when I woke up.  Let’s hope that with 6 more to go it progresses to complete pain and mobility relief and that the relief is long-lasting.

Lasting relief would be great because this Tuesday is when we start the new chemo protocol.  I’ll be having chemo in the morning followed by radiation shortly thereafter.  As Steve Alexander would say, “Woof!!”.  Chemo will consist of VP-16 (aka Etoposide) and carboplatin for 3 straight days (carboplatin will not be given on the 3rd day) and this time around we’ll also be using neulasta on the 4th day to try and keep my white blood cell count above hospital visit levels.  This will all happen on a 3-week cycle so I’ll have chemo the first week and then there will be 2 weeks to work on recovery.

Remember too that the octreotide scan, another 3-day adventure, will be on July 23-25 at Princeton Radiology.  Since I haven’t had one of those yet I’m not entirely sure of what we might learn from this scan.  Of course I know what I’ve read about it but, as always, it’s one day at a time and right now I’m focused on the challenge of this coming week.

What followed my mid-June email plea on behalf of myself and the Mintz’s Mentschen team has been tremendous.  I know that I’ve said this before but you’ll have to bear with me being a bit repetitive about it as I am just overwhelmed by it all.  Love and support from all corners of my life as well as financial support that has my LiveSTRONG fundraising up to $5,160.  Mintz’s Mentschen is up to $16,743 and stands firmly in 4th place in the overall team fundraising standings.  We’re pushing for a top 3 finish so if you can consider a donation please do it as soon as possible.  The August 18-19 event is getting closer and closer!  My fundraising/recruiting webpage can be accessed by clicking here.

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